JULY to SEPTEMBER 2010
  30 JULY 2010
Over the past couple of weeks I've been having problems. I couldn't sit still for any length of time so ended up in bed to get some relief from the pain. I was totally 'out of it' and the furthest thing from my mind was my computer.

I had to wait for 5 weeks between visits to the Wounds Specialist because she went to the UK on holiday. Buying my own dressings has cost me a small fortune and trying different things to try to get it to heal has only caused me more pain.

I almost rattle when I move because I'm full of Panadol, Neurofen (painkillers), Keflex (antibiotics), and Endep, which is supposed to help with the pain but I discovered it's also a sleeping pill. Now, for a person who is not a pill taker I've outdone myself these past couple of weeks and taken more pain killers than I have in my lifetime up to now.  I haven't been able to sleep properly so I have bags under my eyes resting on my cheeks... not a pretty sight.

Anyhow.... I went to the Rheumatoid specialist last Friday. Fortunately there was a slight problem with the steering in Jason's car so I got him to ask for the loan of a car from work (my reasoning was that I didn't want his 'slight' problem end up a 'major' one... that worked... I convinced him...) so I had a comfortable ride. The specialist had a look at the wound on my leg and said it looked more like cellulitis now.... She also said she'd stop giving me any injections just incase whatever they contain might be interfering with the healing process. BUT she has a new drug that she wants me to try...ACTEMRA. There's just one hitch... I have to go back to Maroochydore for the first dose, which is given intravenously and takes an hour. After the first dose she has to make arrangements with the local hospital to give it to me once a month.  That'll be interesting.... since the "blood suckers' have trouble finding veins just to draw blood for blood tests.

I got to see the Wounds Specialist yesterday, she changed the type of dressing and all was fine until about 1 hour after I got home.. She'd put on a compression tube on top of the dressing. My leg started burning from my knee to my ankle.  I got Jason to take off the compression tube to see if that would help. Took some pain killers. As time passed the pain got worse. Just before 4pm I phoned the clinic to see if I could get hold of her.... wasn't answering her mobile (cell phone)..... The receptionist suggested I go to Accident & Emergency. By 4:15pm I was screaming with pain and Jason took me to the hospital.

There was only one lady with a young girl waiting ahead of me. I tried to muffle the pain I was going through but the Triage nurse was taking so long I couldn't hold back any longer... I was crying and yelling with pain and with the place being empty my voice echoed. Staff came running from all directions.

The Triage nurse took me ahead of the lady with the girl.... got me a wheelchair.... removed the dressing, asked a million inane questions which Jason answered because I couldn't. She changed the dressing..... Then she got me a doctor who asked the same inane questions....she removed the dressing the triage nurse had put on because the pain was coming back..... she left and got a more qualified  (??????) doctor.... same stupid questions... they said they'd send in a nurse.
 
I waited and waited and waited for a nurse. Several people opened the door and said "Oh... this room's taken..." and left. Meanwhile my leg, without any dressing is perched on a seat because 'keeping it elevated' was supposed to help..... right..... NOT!!! After 15 minutes the first doctor poked her head in the door and said... "hasn't the nurse been in to see you yet?" So she decided to dress the wound with a couple of pads and wound some bandage around it... it was still burning but she didn't listen. Then I was sent home.

I told Jason to get home quick but drive safely... ignore my moaning..... As soon as I got in the door I went straight to my room got the Algicite I've been using for weeks... Jason fixed up the dressing, I took a couple more pills and the pain subsided.
 
Today I got hold of the Wounds specialist and related the past events. She suspects I'm allergic to the 'silver' in the dressings. The 'silver' is to kill bacteria. So I have an appointment with her next Wednesday and in the meantime have to go back to what I was doing while she was away. Apparently a new dressing (without silver) was approved the week before she left on holiday so she's going to order some for me.

I still feel pain constantly using the Algicite but it's not as bad as the pain I had yesterday, so I'm going to put up with it for a few more days and pray that she gets the new dressings and pray that they work.

  30 JULY 2010 - Part 2

just got a call from the hospital, from the first doctor who saw me on Wednesday. I forgot to mention she took a swab for analysis.... well... she got the result.... I have a bacteria in the wound called Pseudomonas which my current antibiotics won't fix. I need to go to the hospital and have the SURGEONS check it out and will need some sort of injection. They will decide whether I need a 'GRAFT' or if they will be able to use some other method to heal it.

All I needed to hear were the words "SURGEONS" and "GRAFT" and I'm panicking.

She said if I go to Accident & Emergency early in the morning I'll probably be seen to sooner. I have to let them know I'm in for a "review".

I just told Jason.... I was hoping to take a couple of days to think about it and work up the courage BUT Jason insists on taking me in first thing tomorrow morning.... CRAP!!!!

What I can't work out is my GP took a swab, the A & E took a swab weeks ago, the Wounds specialist took a swab weeks ago.... why is it just showing up now????????
 
Honestly... I'm petrified !!!!  I don't want to be admitted to the hospital... I hope that's not one of their options. I remember all too well what they were like when Mum was in there, some of the nursing staff were absolute bitches. That was in Intensive Care... When my Dad was in they stuck a catheter in him to save them helping him to the toilet and when I saw it was bleeding I told them to get it out!!! They tried to tell me he had dementia... I flew right off the handle! I told them he couldn't understand them because he was deaf in one ear and couldn't hear what they were saying/asking from the end of his bed. They said his stroke had affected his vision.... I set them straight on THAT!!!! He already had peripheral vision before the stroke so he was lucky that was the area that was affected.... right!
 
Lord... I'm not looking forward to this.....

Jason sees the bright side (if there is one) by telling me at least they've found out the problem and can now do something about it.  That's OK for him.... he's not the one with the problem!

 
4 AUGUST 2010

Well I just spent 4 days in hospital and was let loose yesterday (Tuesday) afternoon armed with dressings, pain killers and antibiotics. Now you know I have to share EVERYTHING... just to get it off my chest... LOL!!! So, here goes.
 
I arrived at 7:30 am on Saturday and was attended to reasonably quickly since I was there for a 'review'. That's when the 'speedy' part of anything being done ceased. The doctor, who was nice, a South African, took off my dressing, checked out the mess. I wasn't in any pain until he removed the dressing and then stuck it back down.  It started to nip big time.
 
A nurse turned up to take some blood but she had trouble finding a vein... so I told her to take it out of my hand where the veins were obvious. That went well until she moved the needle! I screamed!  She had enough blood so she took the needle out. Then she told me she was supposed to find a vein to insert a cannula BUT she thought she's get someone more experienced.... I told her that was a good idea!!
 
The South African doctor went off to get another doctor to consult and by this time the nipping had become excruciating pain.
 
They both turned up and I was huffing and puffing (like you do when you're giving birth...) trying to control the pain. The second doctor asked if I was in much pain.... I said.. "WHAT DO YOU THINK????"
 
He went off to get a nurse to get me pain killers.
 
In the meantime another nurse turned up to insert the cannula... she did it perfectly... no pain... no mucking around. Said she's check on what was happening with the pain killers.
 
FORTY FIVE MINUTES LATER a nurse turned up with the medication! I'd been using a towel to stifle my screaming. When I calmed down she got me up on the 'bed' to take the weight off my wound.... still with the old dressing hanging off. I cried myself to sleep on the rock hard bed.
 
Mind you the door to the consult room was open the whole time so it would have been impossible for any of the hospital staff to go past and not see how much stress I was in.  This crap went on until about 4:30pm when my dressing was finally changed and I was given more medication including morphine. They wanted to put me in the 'Short Stay' ward... but they didn't want me, I had to go to the surgical ward. I finally got to the Surgical ward and was silently cursing Jason for bringing me in because I was right about how bloody useless they were!
 
The surgical ward provided me with a nightdress, I got changed and into bed. Asked if there was any chance of something to eat since I hadn't had anything since the night before and a cup of coffee would be nice.... I told them sandwiches would do... didn't want a meal. By this time it was around 5:30pm. I had another bout of extreme pain and I couldn't believe how many came to help me. One of the other patients had rung for a nurse, I wasn't able. The staff were incredible, what a difference from Accident and Emergency!  I got a dose of antibiotics intravenously... took an hour. Got some blood thinning injection in my tummy, got medication to alleviate the pain. By 7pm I felt human again.
 
The staff checked me out on a regular basis, more pain killers (even if I didn't need them), regular blood pressure tests. It was 165 over 85 on Saturday morning by the time I left on Tuesday it was 125 over 70(or 65... can't remember). Got the antibiotics every day. Every morning I got a new clean nightdress when I went for a shower and they covered the dressing with plastic so it wouldn't get wet.
 
I had plenty time to think about what had happened on Saturday.... I'm thinking that maybe with the government cutbacks on hospital staff that the A & E staff had too much to do and not enough staff to cope. I sure can't complain about the attention I received in the ward.
 
The doctor who did the rounds each day was also a South African.... he was great. Told me if the wound didn't heal we might have to seriously think about a skin graft. That didn't impress me.. he could see that *S*  But he tried to convince me that a wound on my thigh (where the skin would be taken) would heal a lot faster than the area around my ankle. I told him I thought we'd go with the first option and pray that the ankle heals without a graft.
 
So when he came on rounds the next day with his troop of doctors he told them that I was keen to have a graft if the wound didn't heal! LOL! He was laughing when he said it.... I told them not to listen to him... I'm a coward and that would have to be a last resort, anyhow the new dressings seem to be working..... I couldn't even consider of the possibility of having 2 wounds to cope with!!  He pulled the same stunt on Tuesday morning.... but also told me he would let me go home later that day *S*
 
The Wounds Specialist also came to see me on Monday and Tuesday and was happy with the improvement. I can't praise the staff on the ward enough... they were fantastic and besides medicating me they spent time joking and laughing with me. I hated to leave!!!! LOL!!!
 
Now, what is it with men and hospitals??????? Jason came to visit me once I got settled in the Surgical Ward. I called him the next day to bring me some toiletries and then never heard from him until it was time to come and collect me on Tuesday!! His excuse was that he was busy rearranging the kitchen. He'd pulled out the stove and washed the floor under and behind it. (Something I'd been asking him to do for months). He washed all the cupboard doors and rearranged everything on the benches so that the was more room to prepare food, since he AND Jared were preparing meals together. SO... I forgave him *S*
 
Pity I hadn't been in the hospital longer and he might have finished what he started... LOL!!!
 
Anyway, I went to the Wounds Specialist this morning and got new dressings, which contain silver (yikes!) BUT she also gave me a supply of the same dressings I had been using in the hospital. So, if it does become to painful to bear I can go back to those dressings. BUT these (silver) dressings will help kill the pseudomonas (bacteria) faster.
 
Even though the wound looks revolting it IS healing, even I could see that this morning. The ulcer is completely healed and there's the beginnings of skin growing over the wound area. The red area around the wound has reduced considerably. One of the nurses marked the red area with a marking pen on Saturday and it had shrunk when we checked it today. It is nipping at the moment but I'll suffer it for as long as I can if it means the healing time will be reduced. I have to spend a lot of time with my foot elevated which is hard to do at the computer but I'll work something out.
 
So, please bear with me until my leg and I work out a happy compromise and I'll get back to work as usual as quick as I can *S*
 
I have to go visit my GP tomorrow around lunch time and my Rheumatoid specialist will be calling me on the 11th August to see how things are progressing.
 
If you've read this entire email... I thank you *S* I do tend to waffle but no-one else will listen to me and here I have a captive audience!! LOL!!  Thank you all for all the get well emails, far too many to answer individually but so very much appreciated.
 
I'm going to see if I can prepare the schnitzel for tonight's dinner. Jason and Jared will fix the vegetables and do the cooking, I just want to help out where I can.
 

 
12 AUGUST 2010

YES!!!! Jamie is happy!!!!  Woo Hoo!!!!

At last the wound on my leg is healing.
Went to the wound specialist yesterday and she's happy too.
It sounds yucky BUT the skin is finally dry and getting 'scabby' which is a great sign.
Only 2 teeny weeny patches still to heal and once they are gone I can start using a moisturizer toget the skin to return to normal.

I have an appointment next Wednesday at the Specialist Clinic for tests etc because of my stay in hospital....but I know it's going to go well.

I got home yesterday, waited until Jared left for college, and made a baked chocolate cheesecaketo celebrate!!!! I stood for over an hour preparing and washing up and NO LEG PAIN!!!!I'm going to have to be doing a bit of 'acting' from now on to get Jason & Jared to help me with things... LOL!!!Poor Jason got up early a couple of days ago and washed the kitchen floor.... I didn't even notice... oops!!

The Rheumatoid specialist phoned from Maroochydore... she was thrilled... said the stay in hospital was probably what I needed.She's ordering the prescription for my arthritis pain since it takes 10 to 14 daysto be approved and she'll organise a nurse to come to my home to show Jason and I howto inject the medication. This will save me another 6 hour return trip.
I'll be even happier when I get the medication, my joints are aching,BUT I thank God that the leg pain is gone it's the worst thing I've ever experienced.Five months of sheer hell is over!!

 
19 AUGUST 2010

The week started off on a bad note...

I had been reminding Jason that I had an appointment with the hospital specialists on the 16th of August...

Was working with my nose to the grindstone on Monday trying to catch up on work for the group.
At the same time I had my ear to the radio.... something made me sit back a pay attention....
it was the anniversary of the death of Elvis.... the 16th of August...

CRAP!!!!! (That's a cleaned up version of what I really said. *S*)

By that time it was 2 in the afternoon!

Got on the phone immediately and called the booking office at the hospital, apologising profusely for missing my appointment that morning (senior moment!). I felt like such an idiot but the nurse understood that because I'd been going regularlyon a Wednesday, my mind thought that the 16th was the coming Wednesday.

Turned out that an appointment had already been made for MONDAY 30th August after I missed this one. She already had a letter ready to send to me. Phew!!!

Then I called the Wounds Specialist, Theresa and gave her the good news that my wound was no longer weeping, could I shower without having to cover the dressingand could I start with the moisturiser.... Yes I can... YIPPEE!

So I started with the moisturiser that night.... Monday....
Today.... Thursday...
No more scabby bits... they all fell off.... all fresh pink skin!!!!!
Hallelujah!!!!!!!!

I have an appointment with Theresa next Wednesday and I think after seeing her I won't need the one on the 30th.

Everything happens for a reason.
If Teresa hadn't put a silver dressing on my leg, ignoring my protests, I wouldn't have ended up in hospital,being given a really strong antibiotic (Which my GP also got for me when I left hospital) and after 4 daysof doing nothing with my feet up, I'd probably still be suffering.
So I guess the Hell I went through in A & E was worth it.

Now I can get back on my Arthritis medication. Left a message with the Rheumatoid specialist today.

I'm off to lunch for the first time in weeks.

I had monitor troubles yesterday.... had to wait for Jason to come home and swap it for his,which he isn't using so.....

I did a heap of housework... what a joy to be able to get it done pain free!!
You'll probably think I'm nuts for enjoying housework butI was getting so ticked off seeing what needed to be done and unable to do a thing about it.


  30 AUGUST 2010

Went to the hospital for my final checkup today and got a clean "bill of health" re my leg problem... Hallelujah!!!  I have to keep moisturising it and be careful with it but it's all OK.

This is a great pity because the African doctor was the most gorgeous man since Sidney Poitier!!!! Left me drooling!!!! What a handsome, handsome face!!! I was kinda sorry I don't have to go back... LOL!!! I'm a sucker for good looks!! *S*

Now... my RA medication....
I have a nurse coming on Thursday at noon to show Jason how to inject me. I already have the medication sitting in the fridge. So let's hope it works somewhat. I only get jabbed once a month with this one so I'm not going to end up looking like a drug addict like I did with the last one.....and have an appointment with the RA specialist at the end of November to see how well it's working.

So... I hope by the weekend I'm feeling better..... this is grocery shopping week and you all know how I enjoy that...NOT!!!
 
5 SEPTEMBER 2010

I wasn't going to share because you must be sick of my problems BUT you lost!!! LOL!!!
Some not so good news and some GREAT news......

Since my leg finally healed after nearly 5 months of pain you'd think things would look up from here on... wouldn't you? *S*  No such luck!

While all this was going on my RA specialist had organised approval of a NEW drug (Simponi), but I would need a nurse to come and show Jason how to give it to me.  I got the script filled, it's in the fridge. Organised the nurse for last Thursday at noon. Great... at last I might get relief from the arthritic pain as well.  Dream on Jamie!!!!!
 
The night before I had been lying on the sofa (feet up as instructed) watching TV. I had to get Jason to give me some support so I could get up and go to bed. He gently held me under my arm and I pulled myself to a sitting position.  Went through to my room and was suffering pains in my chest, pains in my shoulder blades (front), couldn't take a deep breath.  Lay down in bed.... couldn't breathe at all. Had to sleep sitting up.  I didn't want to call anyone (or an ambulance) because I wanted my injection the next day and was hoping the pain would subside. No pain in my jaw or arms so I was praying it wasn't my heart.

Thursday.... hadn't had much sleep.... managed a shower and got dressed, still having trouble breathing. Walking made it worse. The nurse turned up, I couldn't talk to her, Jason was in shock. She called an ambulance. The paramedics were fantastic. Did all the heart checks, everything seemed OK thank God. Since they were not sure what the problem was I ended up back at the hospital.... Accident and Emergency. (my favourite place.... NOT!!!)

Got me a bed, did lots of tests and after 4 miserable hours decided I had GASTRIC REFLUX!  I told the doctor my husband suffered from this and I didn't have the same symptoms!!  I got the pains 4 and a half hours after I ate..... my husband used to get the symptoms while he was eating!  He printed out an information sheet for me and sent me home.  I took a couple of panadol and with all the medication they'd pumped into me the pain was almost gone and I could take deep breaths once more. Had no trouble sleeping.

I had an appointment with my GP the next morning... she was shocked that I'd been in hospital. She knew before I saw her because she had notification from the hospital.  I had a letter for her from the hospital doctor. Turned out he wanted her to make arrangements with the hospital for a GASTROSCOPY!!!!  She had me relate the events of the last couple of days and fortunately like me she wasn't sure his diagnosis was correct.  So she said she'd make the appointment... could be 6 months before it happens since it's a public hospital. In the meantime, this coming Thursday I'm going for an Abdominal Ultrasound which should give her more information. If there's no problem then she'll cancel the gastroscopy.  So I'm praying for a positive result. Besides since the pain disappeared I haven't had a recurrence. So I think the hospital doctor has made a mistake.  If I had gastric reflux it wouldn't just disappear.

Now I have to wait for the ultrasound result, which I'll get next Friday before organising my RA injection.

Some GOOD NEWS for a change....

Jared (grandson) has an apprenticeship with one of the top chefs in Hervey Bay at one of the most expensive restaurants here. YIPPEE!!
He and his dad went around restaurants handing out his resume last Friday .This chef offered him the position right away!! He also got a call from another restaurant that night... but not as an apprentice. So he said "sorry... I've already taken a job". 
The restaurant operates Wednesday to Sunday so he'll still be able to do the Hospitality course.

I was thrilled!!! We're all thrilled..... Maybe 2010 IS going to be his turning point after the years of grief he's caused us.  His attitude has totally changed these last couple of days even though he's got a cold and sore throat which we hope will be gone by Wednesday. I'm hoping I don't get it....  Jason's caught it.... nice present for Father's Day!! *S*

 
7 SEPTEMBER 2010

Jamie's in a top mood today!!

Reason for that is.... my friend Marj called yesterday and I told her lunch on Thursday was offbecause of the ultrasound and scan I had to get among other things we talked about.

She phoned back half an hour later and asked if I was doing anything the next day....
Right... my calendar is so full I'd have to check.... NOT! LOL! We decided to try out a restaurant (Black Dog) that's been here for years and I'd never been to it before.
Later I found out Jason used to sell fish to them when we had the charter fishing business.
He'd sell them some of his fresh catch... he always had plenty *S*

I enjoyed the main course sooooooo much I decided to pig out and have dessert as well!!
The plates came out looking like something from the Masterchef TV show... an absolute picture!Had Seafood Crepe for a main course and the calamari just melted in my mouth.
Usually it has to be chewed for 10 minutes before I can swallow it.
Had barramundi, scallops and prawns as well in a light garlic cream sauce... YUM!!

Then I had Strawberry Crepe with a strawberry liqueur, cream and ice cream.
Another 'picture'... wish I'd had a camera with me.SOOOOOOOOO DELICIOUS!!!!!!!

When the waitress came to remove the plate I told her if it wasn't uncouthI would have licked the plate!

Of course we had a couple of glasses of great Aussie wine.

Eat your heart out people!!! LOL!!!

I'm full, not in the mood for cooking dinner so Jason and Jared are having take-away tonight! *S* No sign of gastric reflux or any other problems... yippee!!

It had been bucketing rain yesterday, but today was beautiful... we sat outside,
I felt as if we were overseas somewhere... instead of Hervey Bay.
What a lovely way to spend a few hours!!
  10 SEPTEMBER 2010

I might be given the "Drama Queen" award any time now... either I have a really great day or a really miserable one. Friday was one of the latter.

Went to a different radiologist on Thursday (because they have even more super dooper equipment) for the 2 tests my GP wanted. Remember, my hospital blood test showed a possible clot in my lung.... which of course more often than not (I was told) could be a false positive. I lay on the bed, the radiologist explained what he was going to do.... pump some dye into my bloodstream through a vein .... I wished him luck finding a vein!!   He said he needed one in my arm that could take the dye being pumped FAST through the vein. He couldn't find any on either arm. I said how about my hand???? Told me ... not a good idea because they are thin and could burst and cause complications!!!  He was very gentle... aware of the pain caused by twisting my arm but had no luck. Had to call the 'head honcho".

He came in and started twisting my arms and hitting the area around the inner elbow to get the veins to surface. Every time he twisted my arms my back arched off the bed.... it really hurt! He tried for about 10 minutes.. no luck.... so he decided to go for one in my HAND!!!!!!  I was remembering what the other radiologist said and I was panicking silently.  He got this "horse needle"... it was long!!! He inserted it in a vein, and pushed... my back arched with the pain... he told me to stop moving and had a grip on my hand that was painful. He pushed more, and more and more.... the tears were streaming and finally I ended up screaming. He stopped! Pulled the needle out and gave me a couple of minutes to relax. Then he started hitting on my arms again!

I asked him if he was going to have another try? Said "Not if you don't want me to".   I told him I wanted him to stop and by this time I was crying and had the start of a massive headache.  Since there was every chance the blood test had shown a false positive I didn't think the pain was worth it... I'd take my chances.

The other radiologist helped me off the bed and apologised for what I'd gone through and took me to wait for the ultrasound. One of the staff saw me crying and holding my head and asked if she could help. Got me some headache pills and some water. Then the ultrasound radiologist turned up.... waited until I'd stopped shaking before taking me into the ultrasound room.
 
At least this wasn't painful and certainly not intrusive. After half an hour she told me that I don't have gall stones... everything was fine. She was sympathetic to what I had gone through beforehand.

Jason was there in a flash to pick me up and could tell there was something wrong before I even spoke. We were half way home before I could talk about it. I got myself something to eat and drink and went to bed totally wiped out.

I have to go to my GP today at noon which means I might get in to see her by 1:30 if I'm lucky.... She'll have the results. I'm going to tell her that if she ever needs any tests that involve "horse sized" cannulas inserted in my arms... forget it!!!

At least now I can call the nurse back and make arrangements for her to come next week and give me the RA needle.  I still believe I only had pulled muscles last week and all  they needed was some medication to make them relax.  I've not had even the slightest sign of any recurrence since.   So my GP can cancel the gastroscopy as well!!!

Some good news about Jared (grandson)....  he worked 6 hours on Wednesday, 2 shifts on Thursday, a total of 13 hours and was off to work at 6am this morning for a 9 hour shift and not a peep of a complaint out of him!!!! I can't believe it!!!! He was told on Wednesday afternoon that he was on 2 weeks trial and if he pulled through then he'll have the apprenticeship!!  This is the lazy so and so who would make any excuse not to do things at home.... I guess money talks!!! LOL!!! I'm praying that nothing goes wrong.....

Hopefully I'll be able to get back to normal now. My creativity flew out the window these past couple of weeks ... maybe it will return now that all the dramas are over..... hopefully, never to return